Both good news and bad for coeliacs

The good news first….

The recent furore about the cost of gluten-free food on prescription (see my post here and endless comment elsewhere in the media) has had  some good fall out. Despite the fact that the figures quoted on Newsnight and elsewhere did appear to have been mistakenly inflated (see this comment), Juvela, the ‘leading manufacturer of gluten-freefood on prescription’ have done a deal with their distributors to ensure that none of their fresh bread products is subject to any extra handling or distribution charges on their way to the pharmacies. (Their other products are all ambient and are therefore stock items in pharmacies and not subject to any extra handling charges.)

Well, every little helps….

Now for the bad news.

A new study published in the American Journal of Clinical Nutrition (to be reported on in more detail on CoeliacsMatter very soon) found that of 15 different cultivars or varieties of quinoa tested, four had sufficient ‘celiac-toxic epitopes’ (‘gluten’ to most coeliacs’ understanding) to trigger a reaction.

Quinoa has become one of the more popular grain-type alternatives to wheat, rye and barley, all of which need to be excluded on a classic gluten-free diet. But, although quinoa is not a grass or a ‘true’ cereal (it is known as a pseudocereal), the bit one eats e.g. the seeds –  are seeds in exactly the same way as the bits of wheat, barley or rye that one eats are the seeds of the wheat, barley or rye plant.

(Similarly, both nuts and seeds are seeds – they both contain the kernel from which the new plant will grow – although, for the purposes of allergy definition, one is classified as a nut and one as a seed.

This is a really complicated issue which we tried to unravel a few years ago – see Cressida’s article Nuts and Seeds. When you look at the biology, there is no really significant difference between a nut and a seed – although, the immune systems of nut-allergic people appear to be able to differentiate between them. Or is it that their immune systems just recognise the specific proteins in the specific nuts which they cannot tolerate and the whole seed versus nut issue is a red herring?)

So, could all grain seeds cause a coeliac type reaction? That is what Micki Rose would argue  (see her article Gluten: No grain, no pain), as would  protagonists of the Specific Carbohydrate Diet and Dr Peter Osborne at the Gluten Free Society. But this may be overkill for the majority of those who react to the gluten in grain, either because they genuinely do only react to one protein – such as the gliadin which is found in wheat, barley and rye – or because their reactions are dose related and so they will be perfectly fine with grains/seeds with low, or very low levels of gluten-type proteins.

As yet, it seems, no one knows….

Happy New Year!

I have to admit to having a bit of a problem with New Year’s Eve…  All that forced bonhomie, those overpriced meals, the endless famous faces flitting on and off ‘celeb’ shows. All I usually want to do is go to bed with a good book…. So when the fates conspired to leave me home alone tonight, I could not have been happier.  The remains of a very tasty Indonesian supper, an entertaining episode of Jonathan Creek on the telly and now a short blog post accompanied by a glass of toffee vodka… Yes, I did say, toffee vodka! Bizarre – and I am not sure that I will be drinking it for too much more of the year – but certainly an interesting way to say goodbye to 2010!

Pundits galore have been and will be pondering over the good and the bad of the last year so I am certainly to going to go there but I just wanted to record a few personal / foodsmatter ups and downs.

In health terms – and that is, of course, what we are all about – there have been several ‘ups’. I am delighted to be able to report that John Scott and his worms are still getting on a treat. From surviving, but only just, two years ago on a diet of elemental infant formula, thanks to a cohort (if that is what worms travel in) of Necator Americanus hookworms, he now lives a relatively normal life and, as he told me in an email on Boxing Day, is enjoying some of the 30 year old, cask-aged sherry that his daughter bought him for Christmas.
‘I haven’t had any alcohol for 30 years or more (couldn’t tolerate it) and I’m sure enjoying it now! Just hope my little friends don’t get too tipsy and relax their grip…’

I am also delighted to be able to report that, thanks to a suggestion from John, I have been applying some oxygen therapy to my electro-sensitivity with very satisfactory results. (I will be writing about it on the foodsmatter site early in the new year.) While I am not ‘cured’ (I don’t think one is ever ‘cured’ from such conditions, just better able to cope with them) I am a great deal better, and thefore less restricted in what I can do, than I was a year ago.

Although we do not know what goes on in the lives of most of those who visit and use the foodsmatter family of websites, forums and blogs, we do occasionally hear of people who are coping better or have found at least a partial answer to their problems. Please do report on your experiments and your successes and/or failures. (An email to info@foodsmatter.com will always find us.) We are always delighted to hear and, with your permission, to put them up on they site where they do give hope and encouragement to others who may not be quite so far down the coping/recovery road.

In terms of the foodsmatter family – although I do know that there are still a few Foods Matter subscribers who mourn the passing of the printed magazine, we are delighted with our first year as an on-line only operation. (Can it only be one year?….) We have gone from one site to four (although so seamless integrated that I doubt that any of you have ever noticed) while our fortnightly e-newsletter (sign up here if you haven’t already) has been a great success with even deeply sceptical  ex-subscribers finding its easy links a great improvement on the original magazine.

Meanwhile, the FreeFromFood Awards have moved onto a different plane this year with seventeen sponsored categories, coeliac stalwarts, Juvela, as overall sponsors and over 100 freefrom manufacturers entering up to seven products each! Judging happens at the beginning of February, a shortlist will be out at the beginning of March and Antony Worrall Thompson will be handing out the awards on April 6th! Watch this space!!

So saying, I realise that it is already 11.20 and if I do not hurry I shall fail to have got to bed, read my book and gone to sleep before midnight tolls… So here’s wishing you all a very happy, healthy and prosperous new year and many more to come!  From Michelle, Boris (as seen above), Mushkin and Frodo…

FreeFrom Food Awards 2011 Really Kick Off!

It has been very busy in the Foodsmatter office this week  as today is the cut off date for the discounted early entry to this year’s FreeFrom Food Awards – so the end of the week saw a mad rush of entries all trying to squeeze in before the deadline and get their 10% off! (Those who missed the discount deadline can now relax as the final deadline for entry is not until the middle of December!)

It is all very exciting for us as quite apart from those freefrom companies whose products we would expect to see, we have had a whole batch of entries from freefrom companies we had never heard of – several from outside the UK. And we thought we knew everyone operating in the field!

It is also very exciting because tomorrow we are not only ‘officially’ launching the 2011 awards, but we are revealing this year’s main sponsor. And  because my blog readers are a specially privileged group, you are getting the advance information  – the main sponsors for the 2011 FreeFrom Food Awards are Juvela, long established manufacturers of prescription foods for coeliacs.

For followers of freefrom this is a particularly interesting move. Up till now Juvela have been hard core manufacturers of staple products for diagnosed  coeliacs (breads and rolls, flour mixes, pasta and pizza bases, biscuits and crackers)  available only on prescription. But the forward planners at Juvela felt the wind of change blowing their way. They realised that with the extraordinary expansion in the freefrom market, their core customers are now looking beyond their prescription products to the enormous range of gluten-free products available everywhere from their local health food shop to their nearest superstore – and are prepared to pay for interesting and unusual g-f products which will never be available on prescription.

So Juvela are moving out into the wider freefrom world. They have opened an on-line shop which is quite separate from their prescription business, they have just launched their first four non-prescription, free from products – four breakfast cereals – and they have decided to hit the freefrom ground running by sponsoring the  2011 FreeFromFood Awards! Since we pride ourselves as being the first to encourage of innovation in this sector, we are delighted!!

In fact we are totally delighted by the support we have had from all of the freefrom industry for this year’s awards as we currently have  15 out of a total of 17 categories sponsored and our sponsor list reads like a Who’s Who of the freefrom industry:
Livwell (the Innovation category), Tesco (3 categories), Asda (2 categories), Delamere Dairy, Food and Drink Innovation Network, Genius Gluten Free, Genon Laboratories,  Goodnessdirect, Lactofree, Mrs Crimbles, Produced in Italy, Swedish Glacé…  Roll on the judging session in February and the awards presentation (by Antony Worrall Thompson) and party in April!!

Meanwhile, whether it is the whiff of awards in the air or what, but we seem to have been inundated with excitingly delicious new products!  Chocolate galore: definitely innovative and very interesting dark chocolate with smoked sea salt from Seed and Bean, a really excellent range of dairy free milk chocolate bars, caramels and filled chocolates from Celtic Chocolates for which we are still awaiting prices and availability and, arrived only yesterday, GoDo Italian chocolate. So far we have only tried the dairy-free Expresso but, with crunched up with of coffee beans running through it, it is to die for….

More chocolate, but made into a butter with Brazil nuts (yummy) from Raw Health, a chocolate oat drink from Oatly, and, earlier in the month, smooth and delicious dairy free chocolate fudge from Mooove Over Dairy and mega-gooey-rich chocolate brownies from Blue Basil.

And, just in case you are worrying, with some reason, that none of us are able to fit into our jeans any more….. We have also been tasting rather less indulgent but still excellent new fresh gluten-free breads from Glutafin, gluten-free sandwich wraps (including quinoa and flax seeds…) from Celia’s Kitchen, mini rice cakes from Kallo and, arrived only yesterday and not yet tasted, frozen gluten-free savoury pies and pastries from Gluten Freedom….

Whew – I think I need a cup of coffee!