Obtaining ‘freefrom’ prescription drugs

A couple of months ago we ran an updated version of an archive article on obtaining prescription drugs whose excipients (non-active ingredients such as fillers, capsules and colourings) were free of lactose, starch, corn, azo dyes, sugars etc – a major problem for those with severe allergies or intolerances to any  of these ingredients. (This is not only a problem with prescription drugs but with nutritional supplements – see Micki Rose’s article on trying to get corn/grain-free supplements, for example.)

The re-visit to the subject was triggered by Jackie Broadway’s struggle to get pain killing drugs (after a hip replacement) that were both corn and sugar free as she is acutely allergic to both. In theory there is a system through which you can access such medicines, via companies who can make up the drugs specially for you in a format that you can tolerate. The problem is that this is, understandably, an expensive process so Primary Care Trusts, and now, once again, GP’s are reluctant to fund the ‘special’ drugs unless they are absolute forced to do so. In the event, although Jacquie got one prescription via her GP, she ended up by paying for the repeat prescription needed to get her through to the point at which her hip was healed.

(One might well ask whether, given the ever growing numbers of those who are either allergic or acutely intolerant to these substances, it might not be worth drug companies’ while producing ‘freefrom’ versions of the most common/popular drugs – or even leaving out some of the less desirable ingredients such as azo dyes/colours altogether…)

Jacquie was fortunate in that, although she deeply resented having to pay for her ‘special’ drugs (why should she? If people who ‘self abuse’ by over-eating or generally failing to take care of their health can get free drugs for their resulting diabetes or heart conditions, why should she have to pay for drugs she needs through no fault of her own at all?) she did at least have the means to do so. But such is certainly not the case for everyone.

I have, for example, just had an email from Julie Cox who had read the original article, who has had serious allergies since birth and who needs on-going medications. I have no idea of Julie’s circumstances but unless she is Soros-rich she is not going to be able to afford to fund her own ‘special’ medications on an on-going basis. I am printing her email below and if anyone has any thoughts, helpful or otherwise, please post a comment.

The only even vaguely helpful suggestion I could come up with was to change doctor – and to be sure to interview any prospective new doctor to ensure that they would be more sympathetic. (You are quite entitled to ‘interview’ a doctor before signing up with them, although they are usually rather startled by the request to do so. I would suggest that it was a sensible move for anyone who suffers from allergies/intolerances to make sure that you are going to get a reasonable hearing.)

I have been having medicines made by ‘BCM Specials’ free from lactose, wheat starch, azo dyes, colours, flavours and preservatives.
This has worked very well after a lot of initial effort getting it set up by me but …… all of a sudden my helpful lady doctor is off for months and will may be not be returning and an unhelpful doctor has been appointed prescribing lead and has refused me any more prescriptions of the free from medicines.
I am using OUT OF DATE MEDICINES at the present, but I really need to find a resolution to this as each week goes by they become more out of date! Now GPs manage their own funding they seem to look at you with £ signs in their eyes instead of it being a caring therapeutic relationship as it ought to be! I don’t think I am being unreasonable. My condition has not changed, so why should I suddenly be expected to tolerate lactose, wheat starch, azo dyes, colours, flavours and preservatives!
I have had allergies since birth and was covered in inflamed eczema as soon as cows milk and wheat were introduced. I come from an atopic family with food allergy (type 1), hay fever, eczema, migraine, photosensitive skin, and asthma, affecting many family members through the generations. All generic medicines contain different colours, azo dyes, artificial flavourings, preservatives, and fillers like lactose and modified starches which can be wheat based, all of which have the potential to cause me severe reactions.

These reactions can affect me in terms of asthma, angioedema, throat mouth and tongue swelling, anaphylaxis, eczema, or further irritating of my already sensitive and inflamed digestive tract.

Do you have any ideas? or any contacts that might help me? including other patients on specials like Jackie in the article? I wonder how she is faring?

Allergen Free Medications – Suppositories!

Nutritionist Micki Rose has done it again!  Come up with another invaluable bit of information for allergics!

We have run several articles in foodsmatter.com over the years about the excipients (non-drug ingredients) in prescription medicines that are used to contain the drug, hold it together, make it easier to swallow, taste nicer, look prettier…  (Deadly drugs and FreeFrom Medicines.) The excipients usually include lactose, various gluten-containing starches, sugars, artifical sweeteners and more.  In theory it is possible to get medications without any of these additives but in practice it can be extremely difficult and sometimes impossible.

Well, Micki has just been comparing the ingredient lists of an antibiotic which comes in tablets, in suspension and in suppositories – see her blog post – and guess which has the fewest ingredients – only two fats (meltable palm and coconut oil to make the container) and the antibiotic? The suppository! Check her blog for the full details.