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| Campaigning/support groups, charities and information sites – listed alphabetically by condition/therapy |
ALLERGY
- Action
Against Allergy
Offers information, allergy specialist finding service, newsletters and general
support.
- Action on Additives
A very useful Food Commission website listing the foods, drinks and medicines sold in the UK containing any of the 7 food additives/colourings found to cause behavioural changes in children by the UK Food Standards Agency.
- www.allergyfacts.org.au
The informative and helpful site of Anaphylaxis Australia.
- Allergy
UK
Website of the British Allergy Foundation (Allergy UK) - plenty of useful
contacts and information.
- Anaphylaxis
Campaign
Excellent support group for anyone suffering from a severe food allergy
- American Partnership for Eosinophilic Disorders
www.apfed.org
APFED provides information on eosinophilic disorders and related problems. It aims to increase awareness, educate patients and physicians and provide support for the eosinophilic community.
- Fruit and allergy
This website forms part of the ISAFRUIT project, funded by the European Commission. The overall aim of the project is to increase fruit consumption in Europe.
- www.imallergic.net
A site setup to allow allergy suffers to share their knowledge about allergy advice and suitable food alternatives.
- Irish Anaphylaxis Campaign
A self-help and support group
run entirely by volunteers to help anaphylaxis sufferers in Ireland.
- Bedford
Allergy Support Group
Active local group supporting anyone with any kind of allergy in the Bedfordshire
area.
- Children's Allergy Services
The first dedicated paediatric allergy clinic in the UK, situated in the Evelina Children's Hospital at Guy's & St Thomas' Hospital in London. They treat anaphylaxis, dermatological, respiratory and drug allergies, immunotherapy and gastroenterologial problems, and take referrals from across the UK.
- www.fabed.co.uk
Families Affected By Eosinophilic Disorders - a UK support group for families
who are dealing with severe multiple food allergies and or drug allergies
within kids or adults.
- Food
Allergy and Anaphylaxis Network
A non profit making organisation based in the USA devoted to educating the
public about food allergy. They publish 6 newsletters a year and offer a
range of other useful resources.
- Latex Allergy Support
Group
Active support group for anyone suffering from a latex allergy.
- www.naet.co.uk
Nambudripad's Allergy Elimination Technique is based on Chinese
medicine principles and appears to be helpful with minimising intolerances.
- PAK – www.protectallergickids.org
A support group based in New York state aiming to raise food allergy awareness by promoting education and support to members – and keeping children safe. Services include useful sample letters to schools etc and information on eisinophilic disorders.
- www.peanutallergyuk.co.uk
Web forum for peanut allergy sufferers to exchange ideas and experiences.
- www.whyriskit.ca
Comprehensive new allergy site for teens launched by Anaphylaxis Canada
ASTHMA
- www.alexcurtistrust.org
The Trust which was set up following the sudden death of 17 year-old Alex Curtis from an acute asthmatic attack promotes awareness of asthma, eczema and related conditions in schools for the benefit of staff, pupils and their families.
- Allergy and Asthma Network - Mothers of asthmatics
Nonprofit family health organization dedicated to eliminating suffering and death due to asthma, allergies and related conditions. Excellent resources.
- Midlands Asthma & Allergy
Research Association
Maara conducts and funds research into the cause and treatment of asthma
and allergy, provides education and practical help to GPs and has the longest
running pollen and spore data set in the world.
- Talk Asthma
The sister site to Talk Eczema (see below) which had been so successful that
Deborah decided to repeat the format for asthma.
AUTISTIC SPECTRUM DISORDERS
- Action on Additives
A very useful Food Commission website listing the foods, drinks and medicines sold in the UK containing any of the 7 food additives/colourings found to cause behavioural changes in children by the UK Food Standards Agency.
- Allergy
Induced Autism
A U.K. based charity dedicated to identifying the underlying causes and biochemical
effects of autistic spectrum disorders. If dietary and medical intervention
in autism is for you then this site offers you practical help and companionship
as well as news and resources.
- The
Autism File
Excellent, informative site linked to a quarterly magazine run by the parents
of an autistic child.
- Autism Research Unit
This unit, run by Paul Shattock, has gathered a wide body of research relating autistic spectrum disorders to gut disorders. (http://osiris.sunderland.ac.uk/autism/aru.htm)
- Autism
Unravelled
UK charity providing carers, individuals and professionals with easy to understand
and up to date information on research into the causes and treatments of
autistic spectrum disorders.
- www.autismweb.com
An informational website run by parent volunteers. Good information on the gluten/casein-free diet.
- CARD
The Center for Autism and Related Disorders is one of the largest organizations
in the world providing treatment to children with Autism, PDD and Asperger's
Syndrome.
- The Feingold Association
The original US association, started by Dr Ben Feingold in the 1970s, linking diet with behaviour and learning difficulties.
- Hyperactive
Childrens Support Group
Excellent organisation which, for 25 years has helped and supported families
with hyperactive, ADHD children.
- www.insidethebubble.co.uk
Useful general information site on autism, including a glossary of terms
used in the management of autism, jobs working with autistics, books
and articles.
- Latitudes
A US based organisation which explores advanced and alternative approaches
to attention deficit disorder/hyperactivity, Tourette syndrome, autism and
learning difficulties.
- www.sersu.co.uk
SerSu Therapeutics make vibrational essences which help children with excess energy or who have difficulty maintaining concentration.
- www.visceral.org.uk
Visceral is the research charity run by Dr Andrew Wakefield which co-ordinates
and funds research into the relationship between environmental factors
and the recent increases in diagnoses of autism worldwide. The site includes
research reports, answers to frequently asked questions and a comprehensive
list of publications on the subject.
BABIES & CHILDREN
- Baby Milk
Action
A non-profit organisation which aims to end avoidable suffering caused by
inappropriate infant feeding.
- www.abreathforlife.org.uk
A children's charity with a naturopathic approach to illness. They
offer access to and information about hyperbaric oxygen treatment
at affordable rates.
- Children's Allergy Services
The first dedicated paediatric allergy clinic in the UK, situated in the Evelina Children's Hospital at Guy's & St Thomas' Hospital in London. They treat anaphylaxis, dermatological, respiratory and drug allergies, immunotherapy and gastroenterologial problems, and take referrals from across the UK.
- www.feingold.org
The Feingold Association has 30 years of success in helping children and
adults with ADHD, asthma, and related symptoms through diet and nutritional
support.
- Hyperactive
Childrens Support Group
Excellent organisation which, for 25 years has helped and supported families
with hyperactive, ADHD children.
- The
Parents Jury
An independent jury of parents which seeks to improve the quality of children's
food and drink in the UK.
- vaccines.net
US site dedicated to understanding the chronic effects of vaccines and developing
safer immunization methods for those who choose to be immunised.
CHEMICAL SENSITIVITY
- www.thecanaryreport.org
Blogsite bringing u'nfiltered and uncensored news and information about Multiple Chemical Sensitivity directly from people who have MCS'.
- www.chemicalfree.co.uk
Excellent site set up by Nicky Greenham, herself a sufferer from multiple
chemical sensitivities. Lots of helpful advice on minimising your chemical
exposure, coping with exhaustion, useful therapies and practitioners,
products and foods, plus a support group and newsletter.
- Chemical
Sensitivity Foundation
Main US support group for chemical sensitivity sufferers - excellent and
informative site.
- www.cosmeticdatabase.com
A massive database/safety guide run by the US Envrionmental Working Group listing over 44,000 products and 8,500 ingredients
- www.mcs-america.org
Aims to gain medical, legal, and social recognition for multiple chemical sensitivity (MCS) as a disorder of organic biological origin induced by toxic environmental insults; to provide support for individuals with MCS, CFS), FM and other environmental illnesses and to ensure that environmental toxicants are identified, reduced, regulated, and enforced through lobbying for effective legislation.
- Pesticide
Action Network
Information about PAN, journal, publications, news, activities, links.
COELIAC DISEASE / GLUTEN & WHEAT SENSITIVITY
- www.celiacFacts.com
Information to support your gluten free health and lifestyle". We publish up to 20 new topics each week to our blog and email newsletter, and to our Twitter and Facebook pages.The topics are 95% related to Celiac, but a few are more general food allergy items such as ingredient labeling. Please sign up.
- www.celiacsatcollege.com
Really useful site run by a celiac student with helpful advice and tips for celiac students just starting out at college.
- www.celiac.com
Main US support site for celiacs.
- www.celiaccentral.org
Very supportive site run by theUS National Foundation for Celiac Awareness
- Coeliac
UK
Coeliac UK aims to improve life for coeliacs and people with dermatitis herpetiformis.
Services include a gluten-free food and drink directory, a nationwide support
group network and a range of information leaflets. (Professional membership
is free to healthcare providers). Helpline: 0870 444 8804
DAIRY
- www.avoidingmilkprotein.com
Comprehensive Canadian site covering a number of free-from foods but concentrating on milk allergy.
- www.dairyfreeuk.com
An active support site for anyone with a dairy allergy.
- www.godairyfree.org
Good US support site for anyone on a dairy-free diet – lots of recipes and product information.
- Milk Free Kids
An informative, helpful and friendly site run by the parents of a dairy allergic
child. Definitely worth a browse.
- www.nomilk.com
Websites, books, articles, reports etc covering all forms of milk/dairy allergy/intolerance. Also product inforamtion at .www.nomilkmall.com
DIGESTIVE / IBS
- American Partnership for Eosinophilic Disorders
www.apfed.org
APFED provides information on eosinophilic disorders and related problems. It aims to increase awareness, educate patients and physicians and provide support for the eosinophilic community.
- Core -
fighting gut and liver disease
The only UK charity to address the whole spectrum of gut, liver and digestive
diseases.
- The Gut Trust
Formerly the IBS Network - an excellent UK charity which informs, supports and
educates those with IBS, their families and carers. They also work to raise
public awareness of IBS and the issues surrounding this condition
- IBS register
A site offering hypnotherapy as a treatment for IBS - a register of practitioners,
home treatment tapes etc.
- IBS Tales
Great site run by an IBS sufferer. She offers no medical advice but a wealth
of personal experiences from other IBS sufferers including loads of tips
for coping with all the common IBS symptoms, some articles and a 'pen pal'
linking page.
- www.irritable-bowel-syndrome.ws
Information on the range of treatments available for IBS, from drugs to alternative
therapies.
- www.irritatedbeingsingle.com
An online dating service for anyone with IBS or other digestive disorders.
- National Association
for Colitis and Crohn's Disease
Excellent support group for anyone suffering from Crohn's or Colitis. Information,
research, newsletter and general support.
- www.livingwithreflux.org
A support group for anyone, adult or child, suffering from reflux.
- Children with Ulcerative Colitis or Crohn's
A fun new website develped by two American foundations to support children and teens with inflammatory bowel disease.
ECOLOGICAL MEDICINE
- www.ecomed.org.uk
The British Ecological Society promotse the study
and good practice of allergy, environmental and nutritional medicine,
for the benefit of the public. If
you are a patient looking for a practitioner of ecological medicine,
you can find one on their practitioners' list.
- The Environmental Illness Resource
Provides information, news, research,
articles, forums, and other resources for sufferers of environmental
illnesses such as multiple chemical sensitivity, chronic fatigue
syndrome, and fibromyalgia. Created by a long term survivor
of CFS and MCS.
EATING DISORDERS
- Beating Eating Disorders
Excellent site supporting anyone with an eating disorder
- Beat for Carers
New site for support tyhose caring for poeple with eating disorders: message board, carer's chat, helpline, support groups and information.
ECZEMA & SKIN DISORDERS
- Talk Eczema
Talkeczema holds one of the highest rankings in the search engines worldwide
for eczema sufferers. It was started and is run by Deborah Walsh, whose daughter
suffers from severe eczema and a number of allergies. The site includes an
A-Z of treatments, a newsletter, chat room, features, personal stories and
loads of information - definitely deserves its ranking.
- www.cosmeticdatabase.com
A massive database/safety guide run by the US Envrionmental Working Group listing over 44,000 products and 8,500 ingredients
ELECTRICAL/ELECTROMAGNETIC SENSITIVITY
For ES/EHS information and support organisations
For links to companies selling sheiding devices, meters etc
FOOD POLITICS
- The
Food Commission
A non-profit independent watchdog campaigning for safer, healthier food in
the UK. Latest news on food issues, links, publications, parents jury.
- Sustain
A proactive campaigning umbrella group of over 100 non governmental organisations,
Sustain advocates food and agriculture policies and practices that enhance
the health and welfare of people and animals, improve the working and living
environment, enrich society and culture and promote equity. Check out their
website for current campaigns.
LATEX ALLERGY
- Latex Allergy Support
Group
Active support group for anyone suffering from a latex allergy.
ME / CFS
- Action for M.E.
A national charity campaigning to improve the lives of people with
ME. With information about local groups, quarterly magazine,
telephone helpline, nutritional
supplements etc.
- ME Association
Active association supporting ME sufferers - information, shopping options
etc
- ME ResearchUK
National charity funding biomedical research into ME and CFS.
MENTAL HEALTH / BEHAVIOUR PROBLEMS
- Food and Behaviour
Research (www.fabresearch.org)
A research group headed by Dr Alex Richardson working on the links between nutrition
and developmental/mental health problems - ADHD, dyslexia, dyspraxia, autistic
spectrum disorders, anxiety, depression, bi-polar disorder and schizophrenia.
Their site includes the latest information, research and conference reports,
and copious resources.
- www.feingold.org
The Feingold Association has 30 years of success in helping children and
adults with ADHD, asthma, and related symptoms through diet and nutritional
support.
- www.foodandmood.org
A web-based, user-led company, developed from the Food and Mood Project, providing dietary self-help resources for improving mental and emotional health.
- Hyperactive
Childrens Support Group
Excellent organisation which, for 25 years has helped and supported families
with hyperactive, ADHD children.
MIGRAINE
- City of London Migraine Clinic
A charity conducting research into, and providing treatment for, migraine and headache. The COLMCprotocol has been used as a model for migraine clinics throughout the world.
- www.migraine.org.uk
An excellent and active migraine support group.
- www.migrainetrust.org
Another excellent migraine support group.
MISCELLANEOUS
- Arthritic
Association
A home treatment for arthritis using diet and natural supplements to restore
blood circulation to cramped muscles allowing painful joint to be loosened
- based on the teachings of Charles de Coti Marsh.
- Best Bet Diet
for Multiple Sclerosis
Very interesting site giving details of the gluten, dairy, egg, legume, sugar
and saturated fat free, high Vitamin D diet which seems to be working well
for a number of MS sufferers.
- Galactosemia
Support Group
Useful support group for Galactosemia sufferers.
- Phenylketonuria Support
Group
The excellent site of the National Society for Phenylketonuria (NSPKU)
- Toast
A national charity working with industry, academia, patient groups, the medical
prefession, consumers, local government and the weight loss industry towards
a better understanding of obesity, its causes and the practical solutions
that are or should be available.
- VEGA
Vegetarian Economy and Green Agriculture is a research, information and campaigning
organisation focusing on farming, food, health and the land.
- What
Doctors Don't Tell You
Monthly newsletter and information service, reveals the hidden truth about
medicine. Helps you make informed decisions by giving you facts you won't
read anywhere else.
NUTRITION
- British Association for Applied Nutrition and Nutritional Therapy
The professional body for nutritional therapists. Nutritional therapy is the application of nutrition science in the promotion of optimum health and peak performance, disease prevention and patient care. The primary function of BANT is to assist its members in attaining the highest standards of integrity, knowledge, competence and professional practice, in order to protect the client's interests, nutritional therapy and the Nutritional Therapist.
- The McCarrison
Society
The purpose of the Society, founded in the memory of the late Sir Robert
McCarrison who believed that the most important factor in restoring health
is healthy nutrition, is to assemble scientific knowledge on nutrition and
health that is free from economic and political pressures with the object
of securing the physical and mental health of future generations. The society
runs conferences and publishes research reports and newsletters on the connection
between nutrition and heath.
- Nutritional Therapy Council
The Nutritional Therapy Council works closely with The Princes’ Foundation for Integrated Health to provide a national registration scheme for nutritional therapists. The NTC’s mission is to establish, uphold and advance the standards of qualifications, competence and conduct of those who practise nutritional therapy as a profession, in order to protect the public and provide guidance to practitioners.
Thyroid
- www.thyroiduk.org
A non-profit organisation campaigning for, and providing and support
to those with thyroid or related disease - which they believe to be seriously
under-diagnosed in the UK
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