EGIDs - Caitlin, Erin and Eosinophils
Long-time Foods Matter subscribers will remember reading about two-year-old Samuel and his mum, Amanda. Sam had multiple gastrointestinal, skin and behavioural problems that were finally tracked down to an eosinophilic disorder - a condition that is now becoming more widely recognised. Caitlin Walker and Erin Chappell also suffer from eosinophilic disorders - and their mums, Kelly and Nicky have set up a charity,TEDS, to help other families cope with this truly horrendous condition.
Eosinophilic Gastrointestinal Diseases (EGIDs) are caused by having
too many eosinophils, a type of white blood cell, in the esophagus
(Eosinophilic Esophagitis), in the stomach (Eosinophilic Gastritis),
in the intestine
(Eosinophilic Enteritis) and in the large intestine (Eosinophilic
Our GP prescribed Wysoy with Gaviscon sachets with each feed, which helped for
a couple of weeks, but by the time Caitlin was 12 weeks old, we were practically
living in the hospital. We were emotionally crushed seeing our beautiful baby
in pain and knew that we had to do everything we could to find out what was wrong.
We finally decided to go private and saw a doctor at the Cromwell in London who
diagnosed Caitlin with allergic enterocolitis as well as cow and soya milk allergies
and multiple food protein intolerances.
Apart from multiple food protein intolerances, Caitlin is under investigation for acid reflux and has eczema and asthma. She has lotions and potions for her skin and inhalers for her breathing.
She has been provisionally diagnosed with eosinophilic colitis but this condition can only be confirmed through a biopsy. All the time she is stable and thriving we are reluctant to put her through this invasive procedure.
First published in 2006