Eosinophilic Gastrointestinal Disorders
Continued from Part 1 ...
Jack, now a charming 12 year old boy, is an articulate and animated speaker. During the interview for this article he conveyed a positive outlook toward the bi-monthly endoscopies. Jack is clearly a partner in the team made up of his family and physicians. He is currently on a trial of an intranasal corticosteroid; he’ll be scoped again to determine if the medication alleviated his symptoms presumably caused by environmental allergens. After the medication’s effectiveness is determined, a food challenge is planned: apples. Six to eight weeks eating apples and he’ll be scoped again.
Beth Mays knows how important support and awareness are. When her son, Charlie, was diagnosed with EG his doctor told her there was nothing credible to be gained from consulting the Internet. Beth took the challenge and in 2001 she founded the American Partnership for Eosinophilic Disorders (APFED).
APFED - Support, awareness, education, research, chat room
CURED - Research and awareness
Support, awareness, chat room for families in the UK
First published in 2008